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@tinae

Hello I’m sorry to hear what you’re going through very strange that getting your ears cleaned after 20 years would suddenly cause you to lose your hearing in one ear. AIED it’s very hard to diagnose. Let me explain what happened to me first last July I woke up in the morning with both ears plugged thought it was odd so I had called the doctor thankfully got in they basically put me on prednisone hearing came back couple months later same situation kept getting progressively worse till I had a complete blockage on one side. Initially they diagnosed me with Ménière’s disease, but once it affected both ears, the audiologist determined it was more than likely. AIED, which is a very rare auto immune disease that affects mostly middle aged women. I’ve been on prednisone methotrexate and Humira trying to reduce the inflammation so I don’t lose my hearing completely at this point. It’s OK but it’s going to get progressively worse. During all this with all the blood tests and everything my NRA was a 1.5 which is nothing anybody at my age which is 57 can have a low number. I have a friend who is at a 3.5 and does not have an auto immune disease, so yes, you can have an auto immune disease even though your blood doesn’t show you have one. Seems like getting your ears cleaned after all that time caused the problem which is strange. I have other friends and get their ears cleaned and have for years with no issue. The Tinnitus is a result of the hearing loss. I also have that. That is just something you have to learn to tolerate. Have they put you on steroids at all, the downside to some of this is if you don’t get medicated quickly, it’s hard to get your hearing back. I can tell you that my ENT just gave me a shot of steroids in my ear, which is a little painful to see it could help it at all , your hearing loss is actually worse than mine with what I know so far I would probably say it’s not AIED but you should ask your doctor. Is it getting worse or is it stable and you said this happened in April 2021? I’m not a doctor if this has happened since April 2021 and it’s not getting worse you’re just at the spot where you have hearing loss you probably need to go to an ENT if you haven’t already get a hearing test possibly get a hearing aid if you need it get a little training on Tinnitus therapy which is sound therapy. I really don’t think it’s AIED. I hope this is somewhat helpful. Please keep me in the loop with what’s going on if I get any other scoop or come up with anything else. I’ll definitely send a message. I’m sorry again you’re going through this hang in there.

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Replies to "Hello I’m sorry to hear what you’re going through very strange that getting your ears cleaned..."

I noticed a change in my hearing with my last flare of psoriatic arthritis. Revisited my PhD audiologist and her tests confirmed additional deficit.
She adjusted my hearing aid settings.
Fortunately I have good contact with my rheumatologist and a burst of prednisone seems to have turned it around. Prednisone is likely the most effective drug in
acute autoimmune hearing loss.