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MAC antibiotics and side effects

MAC & Bronchiectasis | Last Active: Dec 29, 2023 | Replies (158)

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@dlynn1210

It’s not malpractice! First - it is fairly rare and not many doctors have ever treated anyone with it. Second - those who are knowledgeable don’t want to tell their patient it is not curable. Many people have a difficult time accepting that while MAC won’t cause their death they will die with it. Azithromycin is the drug that will affect your hearing so being a musician you may want to talk to your doctor to see if you want to take it or for how long. My error was not looking up the side effects for all three when they first prescribed them - but back then I thought I would be on them for a given period and then I would be cured.

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Replies to "It’s not malpractice! First - it is fairly rare and not many doctors have ever treated..."

I agree that it was not malpractice. But, once "knocked down" by the antibiotics, many of us manage to keep the infection under control with saline nebs and airway clearance. My MAC never cleared, but I have maintained for over 3 years now. Waiting to schedule a CT and sputum culture to make sure things have stayed stable.
Are you doing airway clearance?
Sue