I am now home from Mayo Rochester, cystoscopy and exam revealed what they believe to be Lichen Sclerosus. Rare apparently for men and especially for me. I do have some scar tissue in the urethra but not overly restrictive to flow. They sent me home with a treatment regimen of intra urethral ( self catheter) application of a steroid ointment,
Clobetasol .05 percent. I’m on week two and have no relief yet. The entire treatment course slowly titrates down from every day to once a week of 10 weeks approximately.

My Mayo update is that I did the 10 week treatment prescribed clobetasol and it did hep reduce inflamation some but I don’t think it is LS ( lichen schlerosis) nor does my new urologist here at home. I am now doing physical therapy with pelvic floor specialists to try to relieve tension in my pelvic floor muscles in hopes to eliminate distal urethral pain more.
Up stream urethra is considerably better. I still get a “pinch” at onset of urination occasionally and I still have some underlying urethral irritation however it’s better than a year ago.
Wow, a slow but hopefully full recovery . We shall see. 2 painful cystoscopies, self torture clobetasol catheterization, and questionable stricture diagnosis . I can still void my bladder completely.
It’s been a curious interesting journey to present since a 10/1/21 prostatectomy for Gleason 7 (3 plus 4)
Pc diagnosis after 3 years on active surveillance and 3 biopsies, 2 MRI ‘s.
ED is another consequence but this painful result has taken obvious priority.