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Complex regional pain syndrome or reflex sympathetic dystrophy
Chronic Pain | Last Active: Oct 3, 2023 | Replies (185)Comment receiving replies
@katrina123 Thank you for your post. I have had the same issues you have had all my life. I am going to ask for the blood test you had for my own peace of mind. I probably don't have it but I hope I can convince my stubborn FP to request I get the CVID test. I have had the teeth issues and I constantly get bronchitis and pneumonia once a year.
Replies to "@katrina123 Thank you for your post. I have had the same issues you have had all..."
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suzanne2...
FYI...I had to push for answers as to why 3 prescriptions of antibiotics were not working when I had pneumonia. My family doctor insisted that I was not taking the antibiotics that he had prescribed so on my own I went to a pulmonologist and she is the first one who tested my blood and discovered that I had very low antibody levels. Hopefully your doctor will be more open to your being tested and if not you could get an opinion from another doctor preferably an immunologist. With me they tested my IgG, IgA, IgM and IgE levels. Both IgG and IgA were very low. Next they gave me a pneumovax titer test. This test determines whether you have impaired responses to the pneumonia vaccines.
I was diagnosed when I was 67 years old after a lifetime of illnesses. Once I started on immunoglobulin infusions I no longer had serious bronchitis or pneumonia however I continue to have serious dental issues due to a lifetime of low immunoglobulin.
Please push for answers. We are our best advocates.
Let us know what your doctor says.
I will be thinking of you.
katrina123