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MAC antibiotics and side effects

MAC & Bronchiectasis | Last Active: Oct 27 12:28pm | Replies (160)

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@dlynn1210

The first indication that I knew something was not right was the fatique. It took two years to be diagnosed. I took the ‘3’ for three years. No one ever told me that one of the three would affect my sight and one would affect my hearing. I see my optometrist regularly and he knew which one affected my sight but after three years my hearing has taken a huge hit. My sight - now corrected it is 30/20 which I was assured is still not bad. However I cannot hear anyone sitting 3 feet from me now. I would recommend you get baseline tests before beginning the big 3.

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Replies to "The first indication that I knew something was not right was the fatique. It took two..."

I am so sorry! Sound likes malpractice on the part of your providers. I am a musician and the potential of hearing loss scares the heck out of me. Best of luck to you and thanks for your response.

I was on the big 3 for 6 months and then I failed 2 view field eye tests and my eye Dr took me off ethambutal immediately. After being off the ethambutol for 3 months I can now pass the view eye test. I am still on arthromycin and rifampin and it will be a year next month. It is extremely important to see an eye specialist every 3 to 4 months! Also have hearing tests often. You are right about getting a base hearing test before taking the big 3 as it will show any change from taking the meds. Also have an eye exam before the meds for the same reason.