Hello, michhino (@michhino)

Yours was, without a doubt, one of the most eloquent, powerful posts I've read in a long, long time. And your closing advice that we all eat healthy, exercise, and not spend money foolishly couldn't possibly have summed things up in a more straightforward, uncomplicated, no-nonsense way.

Regardless of the severity of our symptoms, all of us are flailing about trying to figure out what's the best thing to do. That word "incurable," and that other word, "progressive,"––two words that have rattled us all, rendering us puzzled, desperate, and possibly even frightened.

I often feel I'm walking a balance beam (not an easy task for someone with PN), trying to go steadily straightforward (think: eat healthy, exercise, and don't waste money on snake oil), one cautious step at a time, avoiding as best I can tumbling either to one side or the other into a pit of despair.

Thank you, michhino, for your post. It's going to stay with me for quite some time.

Ray (@ray666)