← Return to Complex regional pain syndrome or reflex sympathetic dystrophy

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@mary121658

I've had RSD for 7 years now. It started after a total hip replacement. I woke up screaming and had drop foot. You are right about one thing. The weather plays alot with this disease. I live in Florida and when hurricanes comes near us and the barometric pressure changes my RSD is out of control. What started in my left leg is now in my right foot and both hands. I see a pain management Dr who uses ketamine to help me with the pain. He's wonderful. He's even on the news from Time to time. His name is Ashraf Hanna. He is in Clearwater Florida and sees people from all over the country.. I also developed Gastropyrisis. It's a disease where my stomach doesn't empty. Instead my food comes back up sometimes even when I'm sleeping. I take several medications for my stomach. I'm also taking gabapentin and methadone for my RSD. It does spread. I've met a few people who have it full body. The disease has been around for over 100 years. It started back in world War 2. Dr's couldn't understand why soldiers who had to have a limb amputated were in this insane pain. At the time they called it phantom pain. The patients were given high doses of morphine to control their pain. Sometimes it worked and others would scream constantly. It has only been a few years since the Fda began to recognize it as a chronic pain. I hope I've been able to answer your questions. If I can help I will... In peace ✌ ❤ 🌟 Mary

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Replies to "I've had RSD for 7 years now. It started after a total hip replacement. I woke..."

Thank you for your information I'm only 45 and I would love to get the ketamine treatment, but unfortunately I can't afford it and my insurance won't cover or reimburse any of it. I like near Philadelphia and have only heard amazing things about this clinic. And the clinic even tried to negotiate with my insurance, but with no luck. So at this point I have spinal stimulator that works for my arms. But it seems that my health has deteriorated since I've been diagnosed, which I have heard from some of the other people I've been speaking with. Feel free to chat anytime or just vent. Renee