Thanks to the above people for posting regarding your experiences with meningioma. My journey started a couple of years ago. It has been growing steadily since it's accidental discovery. On the 24th of July, I have my first appointment with the brain surgeon in Erie, PA.

Here is the back story: It was discovered during an ER visit for a Posterior Vitreous Detachment of my Right eye. My PCP, at the time did nothing, but my mentally sharp Hematologist decided to monitor it after I took him the CT results. He ordered 2 MRI's about 6 months apart. It has consistently grown since having the CT in the ER. He recommended a neurologist who would not see me without my wearing a mask in January of this year. I opted to wait till the insanity ended. Just prior to that, I found a neurologist locally who would see me without a mask and after looking at the CT and MRI's, he said that I needed a neurosurgeon.

My Meningioma is located in the "logic", left hemisphere of the brain. On the CT, the placement was described as being located in the left frontal parietal region at 9mm. The first MRI located it as being along the posterior left frontal calvarium and it measured 13 X 13 X 15 mm last August. Safe to say that it is located somewhere just under the Coronal Suture that separates the frontal from the parietal lobes on the left side of the brain. Perhaps you didn’t want to know the location of yours, but I needed to touch that area of my head. A follow-up MRI was done in March of this year and it had grown to 1.7 X 1.7 X 1 CM.

Dizzy spells started in June of 2021, a little over a year before the meningioma was accidentally found. I occasionally get them as of this writing (July 2023). Early on, these dizzy episodes involved both eyes. Sometimes neither eye would focus, or the Right eyeball felt like it was on a spring, popping out of the socket and whirling around. Sometimes I would see wavy lines in my field of vision similar to those seen while driving in the summer on a blacktop road, as the sun heats up the pavement. In the past year, the frequency has subsided, and now the dizziness involves the whole head. Even though my new PCP says I cannot feel it growing, I beg to differ. I feel pressure in the top area of the left side of my brain. This pressure is not the classic stabbing headache. It is intermittent and I feel it most in the morning. My eyes are “tired” frequently. My balance has been getting better. With the dizziness, I was loosing balance, falling to the right of my body since February of this year. I have always “caught” myself before hitting the ground. I figure my balance correction ability is due to the fact that I do a full body workout at the gym 3 times a week for 1-1/2 hrs at a time, weight resistance training with treadmill and recumbent bike for a cardio workout. I am in my 6th consecutive year of dutifully working to keep my body healthy. It’s the only thing I have going for me at 72. I should probably state, for those with in inquiring mind, that I am female.

I am curious as to what is discussed at the 1st appointment with the surgeon with all of you commenters. From research, I suspect he will order another MRI before scheduling surgery.

The vitreous detachment of my right eye has gotten better, but I still see flashes of light when I turn my head to the left. The eye "floaters", remain. 26 years ago I was "rear ended" while at a stop sign with my foot on the brake. I suffered whiplash. The floaters originally began with the car crash. What was once "dots" on my field of vision has enlarged to bigger dark circles and outlines of circles. Pain in the arse stuff! I had my vision checked and received new glasses 2 months ago. Yesterday I noticed that I am having trouble seeing the eye of my sewing machine needles. Probably the most bothersome thing is that I have typing dyslexia. I have been typing for 56 years. I never look at the keyboard, I know what I intend to type, yet when I look at the screen after I find reversed letters and numbers. Thank goodness for spellcheck! English teachers will tell you that writing is recursive. Writers are constantly reworking a sentence, a paragraph, a composition to make it more clear and concise. Gone are the days where I could just type what I mean and mean what I type.

I mention the the crash because I'm wondering if anyone has researched the "why" of their meningiomas?
There is a reason/cause for everything under the sun. I was also punched in the face a few times adding to the dysfunction of neck's structural integrity. I perform range of motion exercises to my neck constantly to keep pain and stiffness at bay without drugs and so that I can safely drive the truck.

I'm assuming that I will not be able to drive if I opt for the surgery. At some point, even without it, driving will not be safe. That will make my life difficult. I have no support system. I am extremely independent. I want to die in my own home and not a nursing home or an assisted living center - I worked in those hell holes for years. Besides, they will not take me, I'm an anti vax. I intend to remain that way.