← Return to Complex regional pain syndrome or reflex sympathetic dystrophy

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@mary121658

@overwhelmed I'm so sorry you are going through this. I have RSD since 2012. I had a hip replacement and the surgeon cut my tibial, peraneal and sciatic nerves. I woke up screaming and with drop foot. I've been on methadone since then after getting a pain management Dr. Through my attorney. I was diagnosed by a neurologist with RSD. My pain management Dr is well known across the country for ketamine therapy. It works but you have to keep going back after the 5 days of treatment. I now after all this time can deal with the pain for a few months. There is no cure and no its not in your head however it can spread. I now have rotation to the hip in my left leg where it started and it has spread to my right foot and both hands. I too have tried to take my life with sleeping pills. It's not worth it. I want to live. I'm now in a wheelchair cuz I had the other hip replaced and almost 2 years later I got an infection that just wouldn't go away. I had 4 surgeries in the past 6 months. The infection has gone into the femur. My leg is 3 inches shorter than the other one which is useless. The hip has been completely removed after trying a spacer and numerous infections. Hence the wheelchair. I'm so sorry your husband is going through this with all the other problems you have. One other thing I won't get the spinal cord stimulator cuz I have a friend who did and the leads broke off and she had to have surgery again to remove it and get the leads out.. She got a new one put in and tells me that she is still in such terrible pain. Too close to the spinal cord for me. I wish you so much luck my dear. I know what you are going through with this disease. I pray your husband has a good recovery. God bless you both.

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Replies to "@overwhelmed I'm so sorry you are going through this. I have RSD since 2012. I had..."

Hey overwhelmed, I'm renee. Have crps from a broken ankle. Everything went crazy after that. Got diagnosed early. Had tons of nerve blockers and was on gabapentin. Nothing worked I took my life back by getting a spinal stimulator. I had almost lost my hand. When I got the implant my hand and arm were back 2 normal. Unfortunately it jumped to my other arm and my spine. I've had no problem with the implant I got it April 2018. And medical marijuana helps with keeping my stress down. But weather changes also effect my pain immediately. I keep a daily journal to c what helps and which days r bad.