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Husband had Whipple surgery and chemo: He's uncomfortable
Pancreatic Cancer | Last Active: Oct 1, 2023 | Replies (117)Comment receiving replies
I get my treatment at May Clinic in Rochester, MInnesota. My Pancreatic group wanted 12 rounds of Folfirinox which I did, then 15 rounds of radiation with two oral chemo pills twice a day, then surgery. According to my team, without a Whipple, I would die. With a Whipple I had a chance of survival. I did everything the team asked. Before surgery my tumor was not even measurable it had shrunk so much and my CA19-9 marker was down to 12. My Whipple was 7 months ago yesterday, both scans at 3 months and 6 months have been clean, NED and my CA19-9 marker was down to 3. I am very pleased with the results although the road getting there was tough, I would do it all over again the exact same way. Hope this helps. Best of luck! May God look over you!
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I'm about a year behind you. I'm a 74 year old guy, diagnosed Stage 1 Adenocarcinoma at head of pancreas 2 months ago, received initial Folfirinox infusion at Mayo in Rochester, followed by 2nd and 3rd infusions here in Alaska. I suspect my course of treatment (with additional 5-9 Folfirinox treatment) will be similar to yours and will be returning to Mayo for radiation (if needed) and the necessary Whipple. If you don't mind sharing some particulars.... What was your initial/highest CA19.9 level? Was your Whipple a full or modified Whipple? Was it done Endoscopically and Robotically? Who are/were your oncologists and surgeons at Mayo? Mine are Alberts and Kendall. Thanks in advance for any particulars you're willing to share. Congrats on your NED status and very low CA19.9 level. May some of us follow in your very successful footsteps. The Mayo Clinic is a wonderful place.