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Has anyone been prescribed EB-N5?
Neuropathy | Last Active: Jun 9 9:30am | Replies (87)Comment receiving replies
@ray666 Ray - I looked up the term "neurologist nagging" and it referred me to you. Crazy, right? So, you might just be breaking ground in the medical journals! I've found that most PCP's don't do much testing on the B's, ok perhaps B-12 but I had to ask about my B-6....that was to the neuro doc. Ughhh....frustrating when you have to be your own advocate. I've seen Debbie @dbeshears1 comment on that often. I see my neuro doc in Sept and hope to discuss with her the EB-N3. Like many of us, we go into these supplements with the thinking....OK, is this going to help me? And I do believe some people benefit. Again, getting back to my belief...it all has to do with the cause of the PN as to the effect supplements have on each person. Personally, I'm still searching and found very little that has helped me, and I think there are many in the same boat. But you never know!! Ed
Replies to "@ray666 Ray - I looked up the term "neurologist nagging" and it referred me to you...."
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(@njed) Ed – I wonder, is a neurologist nagger anything like a horse whisperer? You probably noted that I'd written to my PCP this morning, asking about my B6. I haven't heard back yet (she's usually an after-hours responder). But combing through my lab test results of the past few years, I see no mention of B6, only B12, and B12 only once. A few minutes ago, I replied to a post in which a "fasting B6" lab test was mentioned. That was a new one for me. When I hear back from my PCP, if she should suggest a fasting B6 test––or any B6 test that will give me an accurate understanding of where I stand––I'll be all for it! Right arm? Left arm? Jab me anywhere, I don't care. LOL. You may have also noted a few earlier posts in which I and another poster discovered that our EB-N5 bottles indicate 35 mg of B6, not 70 mg; in other words, my daily intake is 70 mg, not 140 mg, as I'd earlier thought. That's still a lot, but at least it's under the NIH's 100 mg daily max recommendation. This is just another example of how we patients must be our own advocates––our own researchers, too. Back only a few months ago, when I got my PN diagnosis and started hanging out evenings (sometimes mornings and afternoons, too) at Mayo Connect, I'd never have guessed how involved I'd become. I'm glad, though; all this involvement keeps me sane. LOL ––Ray (@ray666)