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Widespread Body Pain and High ANA

Autoimmune Diseases | Last Active: Aug 4, 2023 | Replies (43)

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@windyshores

@amykcpa I would not be too worried about that ANA. It is not that high (though level of ANA is supposedly not correlated with severity if illness). It is a signal to see a rheumatologist, for sure, but not cause for alarm.

If your pain is at the 2-3 level you can ask your doc about managing as you have been. You are never "required" to take Plaquenil or any other drug. PT with massage can help a lot, as can things like tai chi, in my experience.

After 20 years of very high ANA, a systemic lupus diagnosis and now scleroderma, my only concern for myself is whether an autoimmune illness is affecting internal organs. Yes we can talk about being proactive and preventative, but many of us have significant test results and symptoms like pain or neuropathy or whatever without any internal damage whatsoever.

Whatever ails you right now may or may not involve internal damage. Your doc can confirm that it is unlikely or not happening at all. Then you can decide on how you want to treat the external symptoms you are having.

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Replies to "@amykcpa I would not be too worried about that ANA. It is not that high (though..."

@windyshores — Thanks so much for your response. I am so new to all of this. How do the doctors determine if there is damage occurring to internal organs? Is that through various blood tests for example to test kidney function and urinalysis to look for protein in the urine etc.?

If there is a chance that internal organ damage is occurring then do the doctors discuss utilization of various drugs as needed, including DMARD’s if warranted, to minimize and halt the damage to internal organs?

Can organ damage be occurring with very low and normal inflammatory markers such as CRP and ESR?

I am working on securing an appointment with a rheumatologist. Autoimmune disease diagnosis and treatment seems very tricky and complicated. Each of us have such varying symptoms and it seems as if the symptoms of many patients don’t align perfectly with the more common autoimmune disorders such as Lupus, Scleroderma which makes final diagnosis difficult.