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← Return to Trigeminal, but not Trigeminal Neuralgia. What is it? HELP
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Trigeminal, but not Trigeminal Neuralgia. What is it? HELP
Brain & Nervous System | Last Active: Apr 15 2:14pm | Replies (46)Comment receiving replies
@californiazebra @fdouglass Your case reminds me of mine. I posted under a few discussion groups (ENT, Covid, Neuropathy) to see if anyone can relate. I have the same issues where my nose and teeth have constant pain. Sinus pressure/pain with clear scans. That is interesting how carbamazapine works for you to bring the pain level down if that's the case I would recommend going back to Neuro. Carbamazepine did nothing for me. I tried a trigieminal nerve block as well. The only thing that helped was 6 weeks post sinus surgery I felt better but the pain came back so the doctors are thinking its not sinus related. I can understand your pain. I wish something worked to relieve my symptoms so I can have my life back.
Replies to "@californiazebra @fdouglass Your case reminds me of mine. I posted under a few discussion groups (ENT,..."
Hi there. Has anyone found any answers to this particular issue?
Mine started in Dec 2023 and it’s been a throbbing pressure in the nose and septum and into the upper front teeth. It actually affects my balance it’s so bad. Sometimes I have pain and sometimes I don’t. Interestingly enough, I have spasms on the bridge of my nose as well at times. It also hurts to move my eyes.
I had sinus surgery in October of 24 but it’s still there. I’ve seen 8 ents and 2 neurologists.
It’s been very very hard!
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For me the Carbamazepine works like an allergy medication. Without it the clear mucus, pressure and pain are unbearable. But, it seams I may have to raise it again because symptom are coming back. Currently I am on 200mg x2 daily.