← Return to Complex regional pain syndrome or reflex sympathetic dystrophy

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@jacquelinedei

Been dealing with this for years, pain over the top, effect every way of life, is moving thru out my body. Need advice and help to stop this disease. I am allergic to most drugs and most pain medications too. I live in a hell but get up every morning and keep going ,but for how much longer I don't know? Any help will be welcome ty

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Replies to "Been dealing with this for years, pain over the top, effect every way of life, is..."

Hello @jacquelinedei and welcome to Connect. I moved your discussion and combined it with an existing discussion on RSD/CRPS. I did this so you could meet the other members already talking about the same things you are experiencing. If you are responding by email, I suggest scrolling to the bottom and clicking on the VIEW & REPLY button so that you can go to the site and read through the messages from other members.

@jacquelinedei, you said you are allergic to most drugs and pain medications, what sort of therapies are you using to try and cope with the pain?

Lyrica, Neurontin, tramadol, Trazodone, Cymbalta, Savella, gabardine, Amitriptyline, anything with a tyline not good for me !! all pain meds last one I can take is morphine now. reaction is anaphylaxis and hives inside and out I have allergic reaction. there are more drugs too but these are the ones off the top of my head. In hopes that one would help and that one of the doctors possible new what they were doing instead of just throwing drugs at me. I was hurt on the job in 2008 here Work force safety loves to push drugs down your throat. they have really taken there toll on me I hate drugs the will not let me do OT PT or alterative medication. I do yoga , and bio tens and I have a wave machine to but all seem to be getting less and less help. pain is going up and up. I keep as active as I can. nerve issue in my right arm.

I was wondering if you have tried a pain psychologist. I have heard they are really good to help with pain management. Some clinics are starting to use Ketamine, pain pumps, and injections . I do not know if you have tried these or are allergic to any of thsrs.