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Anyone else have CHEK2 gene mutation? And have had multiple cancers?
Cancer | Last Active: Mar 11 10:27am | Replies (51)Comment receiving replies
My Dr would have to change my dosage every 3 months on the generic. I use the VA and they will not let us use synthroid. My Dr did some math and figured out how to make the 137mg dosage work for me because that dosage was only made by synthroid. I take 2 pills mostly, 1 day a week I take 1 pill or no pill. I have been on that dosage for 3 years now (12 years on generic). It saves money cause I'm not throwing away pills every 3 months. Since I have been stable I have found myself to be less tired and I realized my hair loss seems to cycle instead of just happening randomly. My body temp control still is wonky.
Replies to "My Dr would have to change my dosage every 3 months on the generic. I use..."
Thank you for the responses on synthroid vs. generic.
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My Endocrinologist has me on generic Synthroid every day. I basically have spurts of energy anymore. Surgery was in April of this yr. I'm a care taker of 2 adults & I'm struggling with lack of energy now. Dr has changed my dosage 2x. So now I'm splitting the 200mg tablet in half & taking the half once a day. My lab work seems to be somewhat a roller coaster still. I'll see her again in Aug & discuss with her about what can be done if anything. I'm trying to boost my energy with protein shakes in the morning. But I'm lagging in the afternoons terribly. If anyone has any suggestions I'm all ears.
The Drs I speak with ARE NOT educated on this gene mutation & their solution is to start YANKING OUT BODY PARTS!! My obgyn wants to do a full hysterectomy on me in October to ward off Uterine cancer from this gene. Ugh! I'm 50yrs young & I won't be a candidate for estrogen replacement either due to the gene mutation. So I'll just "Waver through it" according to Dr. Frustrating!! Tons of questions & NO ANSWERS from the medical specialists. They just sit back & say well there's no data on that so better just take it out!!
Ugh ...