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Long Covid burning sensation inside their muscles?
Post-COVID Recovery & COVID-19 | Last Active: Mar 9 6:27am | Replies (19)Comment receiving replies
I’ve seen so many doctors who have ran so many tests and other than my psoriasis/psoriatic arthritis everything else comes back normal. The autoimmune disease I have causes a rise in specific inflammation markers to be elevated but that was it.
I’ve had every autoimmune test, nerve function test, mri, Ct, heart monitor, etc for all my different symptoms. Nothing accounted for the leg pain, hand numbness, stomach pains, fatigue, dizziness, forgetfulness, clumsiness, etc…. I take adderall for my Brain problems, Tizanidine for my leg cramps, tons of different vitamins hoping to help my leg pains and hand numbness, there’s nothing for my heart palpitations or stomach pains that has been offered…
I’ve seen an infectious disease Dr, neurologist, cardiologist, endocrinologist, gastroenterologist, psychiatrist, and primary dr…. None seem to do or know anything about long covid symptoms, tests or treatments. I asked for the Tizanidine and the adderall for the symptoms I was having.
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Let’s take a bet on how many Mayo doctors read the long haul Covid comments on this site.
The providers “clinics” are making a killing on long haul with no end in sight. Just keep referring and testing seems to be the modus operadi since no one knows what to do. Insurance providers are catching up with the game so verify you are covered before you are tested.
Cytokines are over expressing in us long haulers . So unless someone can address the lingering affects of cytokine activity post Covid then they are probably going to pass you on down the line. That’s basically what a long Covid clinic is...a “gathering” of specialties that examine and test and give you the results ( typically normal in long haulers).
After about 20 visits to doctors, I am proving that my own research and self treatments have helped tremendously. Approximately 30 supplements and Zyrtec and Pepcid combo to tame the cytokines. Exercise daily with or without pain. Keep trying a new neurologist until I find one that knows something. Revving up to see another rheumatologist and and immunologist....The irony is that it’s a long haul to find someone that knows anymore than what you and I know from the internet.