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Adenocarcinoma - newly diagnosed

Lung Cancer | Last Active: Jul 17, 2023 | Replies (164)

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@pixiedust

Hi Donna...thanks for your feedback. Yes it does help! Glad to know I'm not alone, but sad you are going through it too šŸ™ I did go out and buy some Biotene toothpaste and mouthwash which really does help and the sores seem to be less aggravating..I also used the baking soda, salt & warm water which also helped. Yes, the pain in the chest is quite scary. I have to be concious of every single thing I put in my mouth, including fluids. I did buy some Ensure Max in chocolate, and that does help a lot, I just drink it very slowly. I will ask my Onco today about your "miracle mouth wash" as well. But it really hurts when food and/or fluid gets "stuck" in the esaphagus...not fun! I'm supposed to have a month off for my body to somewhat heal, so I hope it does. Then get a CT scan to see if the tumor and the lymph node (in the mediastinum area in back of esaphagus) shrunk. I was hoping for robotic surgery to remove everything, but I'm no longer optimistic about that. My Oncologist is already talking about 1 year of adjuvent immunotherapy with Imfinzi. Then what? Don't know but this is a really scary time.

Thanks again...hugs your way
Sandy

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Replies to "Hi Donna...thanks for your feedback. Yes it does help! Glad to know I'm not alone, but..."

Oh my!! You are going through the exact same thing as me. I have stage 3B lung cancer that has also spread to same area. My tumor is inoperable and they started out saying 35 radiation and 7 chemotherapy treatments. I was really having a difficult time by the 27th radiation. They are also making wait until the first week of August for another PET scan. I was told that immunotherapy was my only option. I forgot to mention that I had hiatal hernia repair about 4 years ago. Iā€™m afraid that is completely fried. I hate that they wonā€™t tell you anything until they do the next PET. But like you I feel like I already know the answer. With the side effects from this Iā€™m not sure I want to go through any more. Iā€™m still waiting on my Rheumatologist to give his ok. Keep us updated.