Yes. It is so frustrating and scary. It's path is distinct to each individual. Mine travelled from right ankle to left knee to left hand to right hand to right knee to nose and lleft cheek to sphincters. Go figure! I use hand controls in my car. Try not to let me get too down.

Have you heard of any one having it in there face and both eyes. The doctors do not know what they can do for me right now. I just like some relief from buring in my eyes. I also settled in my lower right rib cage. Really hard to do anything because some part of your body hurting bad.

Hello @bear420, and welcome to Connect. I moved your discussion and combined it with an existing discussion taking place on CRPS. I did this so you could meet all of the other members discussing CRPS. If you are responding by email, I urge you to click on the VIEW & REPLY button at the bottom of this message so that you can read through the many messages posted by a lot of members about CRPS.

Thank you @janetdh for greeting bear420.

@bear420, I can hear the frustration and concern over the unknown. Have you considered getting a second opinion or having your current physician's give you a referral for a second opinion? Are you currently taking any medications?

Yes I am currently taking medication for this. I go back down to the University of Minnesota on April 7th again and they're going to see what they can do. It just seems that nobody really has an answer for anything even on medication they're all like it's a guessing game. Being a single parent and makes it even harder but I'm glad my son old enough to take care of himself it's just really hard when it's in the eyes in the face and wears a person out for the day. I just hard to do anything cuz you can't watch TV really hard to type on the phone so most of my messages are dictated on this phone right now everything is just more complicated right now.

I sympathize, I wind up dictating on my phone a lot, too, because it's in my left hand/arm. Are you going to a pain center? The one I went to did multiple kinds of therapy for CRPS...the pain was never gone but was more manageable, which made a big difference. (I'd still be going there if I could afford to go to the doctor.)

I was wpndeing

I'm sorry @bear420, I didn't see your posts until tonight, but I hope my answer about therapies is helpful & I forgot to say, I hope your trip to the University of Minnesota went well.

@bear420 I have rsd /Crps since 2012. It started in my left leg after a Thr. Nerves were cut. I woke up screaming in pain and also with drop foot. I was diagnosed with Rsd by a neurologist within the first couple months. The pain is horrible. Yes you are right it can spread. It has moved into my right foot and both hands. I also got gastropareysis from it. It is by far the worst pain I've ever felt. It changes the way you feel, think and live. I'm now in a wheelchair after the other hip was replaced and kept getting infected. After 4 surgeries in the past 6 months all due to infections all hip components have been completely removed. I don't have a hip on the right side now. That's why I am in a wheelchair. I get ketamine infusions for the RSD pain. It really helps me a lot. The pain comes back but I do get relief. The longest I have been able to go without the ketamine is 3 months. That's how long I spent in rehab building upper body strength. If I can help let me know. I've learned a lot about this disease. God bless