← Return to Tymlos side effects I've encountered

Discussion

Tymlos side effects I've encountered

Osteoporosis & Bone Health | Last Active: Oct 27 11:00am | Replies (284)
Comment receiving replies
@amrh

I have had a very similar experience. After starting Tymlos in May at the full dose, I could barely walk. After finding this forum, I reduced my dose, but even at two clicks, my back, shin, ankle, and toe pain is sometimes debilitating. At four clicks, the nausea and vomiting are overwhelming. I was extremely fit, and now I feel like I should be wheelchair bound.

Jump to this post

Replies to "I have had a very similar experience. After starting Tymlos in May at the full dose,..."
windyshores | @windyshores | Jul 5, 2023

@amrh I didn't know two clicks even do anything. Do you think you have an allergy? Have you tried Forteo or Evenity? That sounds like a terrible experience,

I was tapering Tymlos because I was coming off and had Reclast scheduled for next week. I have ramped up quickly and lots of side effects at 7 clicks. Lasted 3 hours and now I am okay. Blood pressure stayed okay at 105/55.

I would really like to know how size and weight dependent the dosing is but I am sure there are no studies yet. I have told the company about doing partial dose with excellent gains.

VIEW AND REPLY
gwpitt | @gwpitt | Jul 24, 2023

I was in great shape 4 months ago: elliptical, Nordic Track, swimming, golf, weightlifting. 3 months after starting Tymlos, I have painful ankles, shins, back and knees. I can walk 7000 steps with pain afterwords and can do nothing else. I recently returned from a trip and required a wheelchair to go from the plane to the airport exit.

I have seen 8 physicians and no one can figure it out. I do have new left calf atrophy so there may be a true ruptured disk component but my symptoms are way more extensive. I decided last night that I need a month of Tymlos to see how it is affecting me. I don’t want to reduce the dosage because I need to see what Tymlos is really doing so stopping makes more sense.

I have to ask my MD if I need to replace it with something else. The pain has destroyed the quality of my life and the (current) treatment is worse than the disease. My next step is to go to a major neuromuscular center (like Mayo Clinic) if I can’t get resolution.

GSW Pitt

VIEW AND REPLY