Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I had mixed feelings of your first experience with PMR taking 3 and half years for a complete remission of your PMR. It just seemed like a life time of tapering down. Your second time experience with PMR of 1 and a half years seemed to be the experience I see with many people that are on this forum. Having only been on prednisone for only 3 and a half months, I realize I am chomping on the bit and want this to be done now. I understand this process of tapering down is unique to each of us. I am currently easing into a life style change of no sugar, eating healthier, and exercising.
I do keep a journal or daily log of the pain level and my dose of prednisone for the day. I then share my journal data with my rheumatologist. After moving from 15mg to 9mg in 3 months, I felt OK dealing with a day to day pain level of a 2 or 3. Upon moving from 9mg to 8mg after 2 days on 8mg, I then had flare ups of a pain level of 8 out of 10, reminding me why I was on steroids. I do not want to go back to those days of pain, so I am staying on 9mg for the time being. I like your train of thought of increasing dose to half of previous taper.
God bless you for helping people like me and others starting this journey though PMR. It seems you have been through a lot in your journey.
Thanks again for sharing your experience and knowledge.