It is scary, isn't it Bon? But here's the thing, a diagnosis of bronchiectasis is not uncommon when one has NTM/MAC. I've often considered bronchiectasis the least of my worries. I still walk three miles a day, still don't need O2, and while often fatigued, am still able to breath okay most of the time.
This response is from the National Institute of Health when asked this question: What is the life expectancy of someone with bronchiectasis?
If properly treated and monitored, most people with bronchiectasis have a normal life expectancy. People with bronchiectasis are more likely to die because of other medical conditions that affect all people (like heart disease or cancer) than to die directly from bronchiectasis.
I hope that once you leave NJH and return to your life, your anxiety will lessen. Being there - and for me even the thought of going there next week for a follow-up - makes me very anxious. So I pray, I play with my dog, I reach out to friends, and I know that I am doing all I can do. It might not be what someone else with NTM does, but it's all I can do. If I'm afraid and need to cry, I cry. If I'm angry that I'm still isolated after 3 years due to the pandemic, I need to clean something. If I need a hug, I ask my husband. If I need an ear to vent, I call a friend or come to this forum. Your diagnosis is not the end of your life. You will need to be more careful around other folks, do your airway clearance, eat well, and exercise. But you are going to be okay. There is life with NTM and bronchiectasis. Busy