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Has anyone been prescribed EB-N5?

Neuropathy | Last Active: Jun 9 9:30am | Replies (87)
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@daj3333

Thanks Debbie. Guess I didn’t consider that. I switched from my first one because she just wanted to put me on medicine which made me sick. I was hoping the second would be a little more innovative. Wishful thinking lol. But I don’t know how I can trust him when he said he read the blood test results from my PCP that showed my B1 was way low and I was positive for an autoimmune disorder and he said all my results looked good. My PCP said the neurologist I’m seeing now has a good reputation. Makes me wonder how you earn one of those in the doctor community

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Replies to "Thanks Debbie. Guess I didn’t consider that. I switched from my first one because she just..."
Debbie | @dbeshears1 | Jul 5, 2023

We shouldn’t feel bullied into not getting the best care, because sometimes things are overlooked. It sounds like you have a good PCP to team up with, and in my last state, I had the absolute best medical partner in my PCP. It’s just hard to keep on top of or correct/clarify poorly written or unfair doctor notes or mistakes. I tried unsuccessfully in 2018 to get a report corrected that erroneously stated I’d had my tonsils removed as a child. My ENT in 2020 treating me for throat cancer was surprised to see my tonsils in there. He was smart, knew they didn’t grow back, and was glad he could take one out as an option to biopsy. Little thing, but I wasn’t able to get it corrected the one time I tried. We just have to read our portal notes and records.

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