Foot neuropathy: What gives you relief?

Posted by kathrina @kathrina, Nov 5, 2019

It seems if I get enough activity/exercise daily I don’t have pain; if not, am awakened from sleep and must get up (even in the middle of the night). What’s going on & what more should I do to avoid rest-disruption?

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@davidpn

I would reiterate the value of R-Alpha Lipoic Acid. My neurologist pointed out that even though it’s not fda approved there is some evidence that it helps.

Speaking of fda approval. There are so many vitamins and vitamin companies it makes it difficult. Would they have to test i.e. all R-Aplha Lipoic Acids from each vitamin company???

Wheras I recently heard of a new med. for brain cancer at stage 3 of 4 for fda approval. That’s doable.

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Which brand of lipoic acid are you using and does it bother your stomach?

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Hi,

I use HMS Nutrition (from Amazon) for a few reasons. One, it’s the natural version (that’s the R-ALA). Two it’s 300 mg. (twice a day). and finally it’s in capsule form. Very few with all 3. The 300 mg. x2 does not upset my stomach. However, cannot speak to higher dosage.

Good luck.

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@davidpn

Hi,

I use HMS Nutrition (from Amazon) for a few reasons. One, it’s the natural version (that’s the R-ALA). Two it’s 300 mg. (twice a day). and finally it’s in capsule form. Very few with all 3. The 300 mg. x2 does not upset my stomach. However, cannot speak to higher dosage.

Good luck.

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by the way, splitting the dose lowers the chance of side effects in general.

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I was diagnosed with PN in 2016. It took many, many years to find foot relief that was long lasting. I will list what I have found that helps, in case it will help someone else. I have to follow a particular regime. (This is after several years of trial and error.) Without boring you to death with all the details, here are a few "musts" that I follow everyday.
I wake up and rub my feet with THC ointment. Then, I always put on "Soothesocks" (elastic toeless), after the ointment and before I put on my "regular" socks. Then, I put on my "tennis shoes" (lots of different names for those babies now), but NEVER the same pair of sneakers 2 days in a row. I have six pair. There are times when I must change my shoes in the middle of the day. I go through the same morning routine at night. I rub my feet with the THC ointment except I DO NOT wear the elastic socks to bed. I must admit, I cannot take those elastic socks off UNTIL I am ready to go to bed or the pain come rushing back! That routine works for me right now! Best wishes!

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How do I post my problem?

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@kingfish1952

I'm also on mission to lose weight and have been moderately successful. My feeling is that the less weight put on my feet, the less pressure there is on the nerves. My neurologist concurs.
My neuropathy is at its worst when I'm in a closed shoe (versus sandals) and when I lie down at night and wake up in the morning. When I walk, it is less so because of the sensory distraction of walking I believe. Losing weight is tough but it can be done particularly with intermittent fasting.

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Losing weigh can be challenging, especially if you're older & on medications that can cause weight gain. I have recently lost 10 lbs using a website called http://www.fatsecret.com. Using this tool, you can precicely calculate everything you are eating in a day. You can keep track of calories, carbs, protein, etc very accurately. I favor low carb & since I am small, I keep my calories at under 1200 & net carbs under 20, while keeping my protein at optimum levels (on some days I add whey protein, if necessary). I eat 3 meals a day. Fatsecret has thousands of foods to choose from, including some restaurants, and allows you to adjust portion sizes. I posts everything I eat, even including a stick of gum. It's very educational & enlightening to have a tool that accurately calculates daily food consumption. Just something you might want to check out. Good luck on your mission.

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Take Medicinal Marijuana and magnesium. Cut out caffeine completely.

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@fala

I was diagnosed with PN in 2016. It took many, many years to find foot relief that was long lasting. I will list what I have found that helps, in case it will help someone else. I have to follow a particular regime. (This is after several years of trial and error.) Without boring you to death with all the details, here are a few "musts" that I follow everyday.
I wake up and rub my feet with THC ointment. Then, I always put on "Soothesocks" (elastic toeless), after the ointment and before I put on my "regular" socks. Then, I put on my "tennis shoes" (lots of different names for those babies now), but NEVER the same pair of sneakers 2 days in a row. I have six pair. There are times when I must change my shoes in the middle of the day. I go through the same morning routine at night. I rub my feet with the THC ointment except I DO NOT wear the elastic socks to bed. I must admit, I cannot take those elastic socks off UNTIL I am ready to go to bed or the pain come rushing back! That routine works for me right now! Best wishes!

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What brand name of elastic socks do you buy

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@kathrina

I am a retired dancer & hold a m.s. degree: circulation increases with exercise.

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Due to type 2 diabetes I have neuropathy in my feet and legs, they always feel cold to me.
I was active and walked 3 miles daily until I had a stroke 2 years ago. That stroke left me with damage to my left leg, it is weak and greatly impacts my balance.
I walk in a pool now.

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@bettyg81pain

What brand name of elastic socks do you buy

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Hi Betty,
I found "Soothesocks" help me a great deal!
I even tried wearing, then not wearing and they DO really help.
You can find them online, but VERY different pricing!
Good Luck!

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