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jerrysgirl3, God Bless You! I do know you can run fever with Lupus and have wrist pain. I agree, I question the high dose unless your autoimmune markers were high for Lupus. I say start low and build up with most medicines. It's easier to build up to a higher dose than to come back down. I started out on 100 mg daily and for about 5 weeks I did great. Then I started having wierd headaches (sharp pains in my head/tightness on the sides of my head) and the nerves (trigeminal I think) were jumping in my face on the daily dose of 100 mg. I called the nurse and told her it was helping with my pain and inflammation from Lupus, Arhtritis and Fibromyalgia, BUT, the other things started. I started taking 100 mg every other day. I am feeling better, but the symptoms are not completely gone. I see the rheumatologist this month and perhaps I can try something else. Praying for you to get better soon!
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Hi. I called rheumatologist to tell them I was cutting one pill out and not feeling good. Got a call back later on (after I had taken that one pill) to stop both pills!! Probably shouldn't have been on them to beefing with since it seems that my major issue, the hives, were food allergy related, not lupus. Will see doc at end of month. Hope no damage was done to me.....
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The problem is, I never had any issues other than the hives rash (which turned out to be food exacerbated allergies) and a little swelling on the top of my hand. I will call rheuma but that is a whole thing unto itself. 🙁. I don't think I should be on 400mg/day!! And I'm also on leukemia meds. Have call into oncologist who I'm supposed to see today. I guess I should wear a KN 95 mask to protect other cancer patients. Think I might have bladder or kidney infection. Pain and difficulty urinating. (Along with low grade fever which is going up again )