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@ilean

I am so sorry to hear about your daughter. My 4th GI doctor did an EUS - Electronic Ultrasound on April 10th. He discovered moderate inflammation all over my stomach and polyps. Gastritis is what I believe he thought the inflammation was from. He prescribed me Sucralfate 1 gm 2 times a day. Most websites say you should take it 4 times per day
but he said twice. It made me very nauseous so I started taking Zofran as well. It was still hard for me to eat but after about 6 weeks my pain was pretty much gone. The web says it can take up to 8 weeks to work. I still feel bloating and discomfort after eating much but I think that is because I had lost 33 pounds during the 1st 12 months I was dealing with this. It is miserable and you can’t understand until you experience it. I hope this helps. One other major thing is I went to a pain management doctor in December when I was down to 95 lbs and he was shocked at my size. He prescribed me one 4 mg pill of Hydromorphone per day to be taken 40 minutes before I ate. Then I would eat even a few slices of turkey and try to drink some fluids for hydration and I wouldn’t feel the pain and discomfort from eating and drinking. I gained 5 pounds in 4 months this way. He was a God send for my overall health. I saw 3 GI’s at that point, spent 7 days total in the hospital, 4 or 5 ER visits and not one Dr cared about my weight loss and dehydration. I have now gained another 2 lbs but am having to pay out of pocket for IV fluids. I can’t find a Dr that takes dehydration seriously enough to prescribe it for me so my insurance will pay. I don’t understand!! Best of luck to you and your daughter. Please let me know if you find a solution.

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Replies to "I am so sorry to hear about your daughter. My 4th GI doctor did an EUS..."

Thanks Ilean, it all started after she caught COVID in may last year, she has had so many tests done (ultrasound, endoscopy, tomography head MRI, infiltration + blood & stool these last 2 all coming out fine now, and the rest all ok. I took her 3 times to ER last year, on the 3rd time (August) her pain had intensified, they were going to send me home and I refused, thank god I did, 3 days later they did an ultrasound and the same day she was operated and had her appendix removed. After the operation, I imagine due to the antibiotics, her continuous diarrhea was sorted. But each blood work was getting worse (during about a 3 month period) and her digestion was incomplete. GI Dr didn't see it a problem. Went to a private GI and he tested for parasites, she was loaded with Giardia, this was treated and her blood work all went back to normal levels and digestion complete (strange thing, nobody else or the animals tested positive).
She is 24 hrs a day with tummy pains and headaches in more or less intensity, depending on time of day (she can't get up until about 11 due to the pain) and how much she eats. The Drs thought it could be ACNES (trapped nerve syndrome) as she has two focal points each side of her belly button where it hurts a lot more, and when they do carnett's maneuver it comes out positive. They infiltrated the 2 focal points, just caused more pain during 5-6 days.
I think we may have been in touch before, I believe you commented on my post of continuous tummy pain.
I do hope you also find a solution, and if you have any success with anything, please let me know. I'll do the same.
Take care and best of luck

Doctors are told what they can do by insurance Companies, my doctor was the same way, I have a new pcp now at least this one listens ,