← Return to Squamous Cell Vulvar Cancer: Who out there has this cancer?

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@sunny98

I had a partial radical vulvectomy and all inguinal femoral nodes on left side removed in January 2011. Cancer had not spread to nodes. I am actually here online because daughter now has bladder cancer and I happened to see and followed this group. I would be there for any of you at anytime if you have questions. Every experience is different but I will answer any questions that pertain to me if it will help you. I had very little support because i was so embarrassed because of where my cancer was so I suffered emotionally and physically alone. I still get checked several times a year, had a nickel sized biopsy a few years back but doing ok. I have a few “The NEW ME” things but honestly i’m so grateful for my life. I wish i could just hug all of you. My heart and soul is with you.

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Replies to "I had a partial radical vulvectomy and all inguinal femoral nodes on left side removed in..."

I had the radical vulvectomy as well and was just informed that my doctor is now going to remove the whole area of lymph nodes in the pelvic area. Is it painful? How long were you in the hospital? Recovery time?

I have a question. After surgery I ended up ripping my stitches out accidently. So I think I have more scar tissue then normal (I think). The problem is the scar tissue is partially hanging outside my vagina. So I have to wear a thin pad everyday since it causes me to leak urine . I am 55 and don't want to live like this. Has anyone else experienced this?;if so how do u deal with it? My surgery was Nov 2022. TIA