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How long does it take for Tymlos side effects to subside?
Osteoporosis & Bone Health | Last Active: Sep 7, 2023 | Replies (185)Comment receiving replies
I do NOT have a needle phobia. I actually watch as the phlebotomist draws blood and I have given a dog sub-Q fluids. What I have is a fear that the adverse reactions would exacerbate my balance issue which could prove fatal for me. I am considering risking a fracture over death or being paralyzed from the neck down. ( I live in a three story townhouse.) That is why a slow release from a patch appeals to me . Others might stay with the program if the adverse reactions were mitigated.
Replies to "I do NOT have a needle phobia. I actually watch as the phlebotomist draws blood and..."
I understand your fear. I have the same for a different reason.
At -4.3 and 8 compression fractures, my spine will not withstand a fall. Every doctor who has seen me has warned me against falls.
Fortunately, although I have experienced some lightheadedness, it has not been a big issue.
Still, that is why I have decided not to try another click until all side effects subside.
I take my precautions and am very aware of my situation. I will not risk a fall, but cannot risk more fractures.
Even if it means going veeeery slowly up to the therapeutic dose, as long as I physically can, I will stick to my treatment.
Oh gee, I was not implying you were a needle phobe. Needle phobia is a real obstacle to treatment for some, though and is not a pejorative term. The thing is the slow release patch is not effective. I have central vertigo, inner ear issues and vestibular migraine so I understand the loss of balance (along with 7 spinal fractures). But I have not had that issue with Tymlos myself, except for the first week or two.
As with my cancer meds, I don't think that effectiveness is possible without side effects, at least for some of us. Side effects may be a byproduct of the very mechanism that makes the drugs work.
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Your story falls into "life ain't fair" category. I have no magic to sprinkle over you, but you can wonder with me if men got more of this health issue, do you think there would be better medicine and testing? My story is I've shrunk more than 3" and I only have osteoporosis in one hip. Take care and trust your own judgment.