← Return to Fibro acts up whenever I lay down to rest, When I first wake up A.M.

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@emo

So sorry to hear about all the troubles and wishing you all the best. I’m not sure if your background, but do you think it might be possible you could have polymyalgia rheumatica (PMR)? (It’s most common in older people and because of the way it presents and in the age group, it’s often a missed diagnosis or mistaken for fibromyalgia.)

It’s an autoimmune inflammatory arthritis that causes severe muscle pain and fatigue in the large muscle groups, it can cause early morning stiffness for hours and/or it worsens with rest. Sometimes a viral infection (such as COVID) is thought to be a contributing factor.

I just thought I’d bring it up because of my family’s experience, as it was overlooked in my father because it could be mistaken for “getting older” and fibromyalgia.

If you’ve had any blood tests done for inflammatory markers, people often have extremely elevated sedimentation rate (ESR) and c reactive protein (CRP), but confusingly some people can still have it without elevated inflammatory markers, but that is less common.

I know I could be totally off-base, but just thought I’d bring it up if your AM pain is much worse than it was before and in case you might fit the common profile.

Wishing you all the best.

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Replies to "So sorry to hear about all the troubles and wishing you all the best. I’m not..."

Oh the morning pain and stiffness, good catch. As PMR was coming on, I couldn't understand why I always felt better in the afternoon and after stretching.
@healthybon Do check out the Polymyalgia Rheumatica Support Group here.
https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/