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DiscussionHas anyone been prescribed EB-N5?
Neuropathy | Last Active: Jun 9 9:30am | Replies (87)Comment receiving replies
Replies to "@daj3333- I agree with you, I can't reach any of my doctors by phone the same..."
Hello, Ed (@njed), @daj3333
Can you forgive me for playing a game of wishful thinking? I didn't mean to give the impression that I have an easy time getting a message back from my doctors. My neurologist (the one I will ask about B6; I have a neurology PA, too, but in a different clinic) can be a little difficult getting a response from. I've learned a trick that helps, but it's far from perfect. The neurologist has an assistant named Dave. He and I have talked back & forth a lot in the past year. What I'll do (as I will tomorrow re B6) is call Dave, ask him my question, and ask him to bug the neurologist for an answer. Three times out of five, I'll hear back that day, never a phone call (that'd definitely be wishful thinking); ordinarily, I get a brief reply via my patient portal. It's not the greatest, but at least it's something. My PCP, on the other hand, is typically pretty quick with her replies. I intend to ask her about my B6. If she cannot find any recent lab work showing my B6 level, I'll ask her to refer me to the lab for a new test. Beyond these two, however, communication with my other doctors leaves much to be desired. A few weeks ago, I "fired" my dermatologist because her office had obviously outsourced its telephone service, the office number having changed from a local area code to 1-800 or 1-888. I'd left countless messages trying to make a simple change of appointment, never once getting a callback. Finally, I sent the office manager and my dermatologist paper letters saying I'd had it: Enough is enough! So, I agree: the U.S. interface between doctors and patients leaves much––MUCH!––to be desired.
Ray (@ray666)