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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Jun 25 3:06pm | Replies (217)
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@tinae

Also, I think it’s ironic that you have had this for 30 years and reached out found the mayo clinic just to share your story I mean that’s amazing. I only ended up on connect because I went to them for a second opinion and they told me they could do nothing else than what the doctors were doing which gave me peace of mind that I was getting the best care I could. I’m glad that I got to meet you Becky.

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beckyseattle | @beckyseattle | Jul 4, 2023

I got on Connect because I’m starting to write a blog for my chapter of the Hearing Loss Assn of America. I thought I should get an idea of what people with hearing loss were talking about. I didn’t imagine I’d start responding to posts. I guess I’m just unable to keep my opinions to myself.
I’m glad I met you too. You made me look back and remember, which is probably the best thing that could have happened. And besides, my heart goes out to you. It’s a tough road to walk. The doctors do their best, but they only treat the disease. Your loss is much bigger than the disease

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