I get reactivations of Epstein Barr Virus. I had to have tooth out despite a root canal and three courses of antibiotics (immunologist said it could kill me). I had cellulitis in my ring finger after tripping and my ring digging into my finger (had to have my wedding ring cut off).
My CVID is worsening. I am not on treatment yet. Apparently, not enough infections to justify it. I will get there, they say.
I try not to think about it too much.
My cousin has CVID and problems with bacteria and she has RA. She is crippled now. She also has the problem with EBV.
I am sorry you go through this.