Does anyone else have CVID?

For those with CVID and neurological issues, you may find this enlightening: https://www.youtube.com/watch?v=lnRgUDPQhfY

They also have new research and studies out regarding fatigue, pain, and CVID:

I'm so sorry. My sister has had plenty of autoimmunity herself and I see her suffering as well. I have opportunistic bacteria and viruses

I get reactivations of Epstein Barr Virus. I had to have tooth out despite a root canal and three courses of antibiotics (immunologist said it could kill me). I had cellulitis in my ring finger after tripping and my ring digging into my finger (had to have my wedding ring cut off).
My CVID is worsening. I am not on treatment yet. Apparently, not enough infections to justify it. I will get there, they say.
I try not to think about it too much.
My cousin has CVID and problems with bacteria and she has RA. She is crippled now. She also has the problem with EBV.
I am sorry you go through this.

My SFN was originally considered idiopathic, but I was subsequently diagnosed with Sjogren's Disease (autoimmune disease), and then Common Variable Immunodeficiency. Diagnosis of Sjogren's was based on lip biopsy, as I did not have antibodies. SFN and fatigue are common in Sjogren's, along with lung, cardiological and other systemic impacts. Sjogren's is not simply dry eyes and dry mouth, and there are other variants with primarily neurological impacts. You might want to check out the Sjogren's Foundation website: https://sjogrens.org/ as well as the Smart Patient's website at: http://www.smartpatients.com.

I have CVID. I also have a demyelinating nerve disorder called CIDP. What is your question? Are you on IVIG/sub-q?

It's a shame that no one will routinely try to treat fatigue with a variety of stimulants already on the market.