Connect
← Return to Does anyone have nutcracker syndrome?
Discussion
Does anyone have nutcracker syndrome?
Kidney & Bladder | Last Active: Mar 21 2:18pm | Replies (38)Comment receiving replies
My PCP first said that you can't have this condition if you are post-menopausal. Wrong - any woman who has had multiple pregnancies can have it no matter what age. Men can also have this condition - my young son (age 26) has it. Also, a vascular electro-physiologist can treat it from what I was led to understand. It is treated using hormone therapy, embolization or surgery to remove vein.
Replies to "My PCP first said that you can't have this condition if you are post-menopausal. Wrong -..."
Connect
Ah, I see! Thank you for sharing your story, and it is true... you need to be your own advocate.
So from what I understand, from research and from the vein specialist showing me the Nutcracker Syndrome (NCS) on my CT scan, in my case, it appears the Left Renal Vein (from my Kidney) is being compressed between my Abdominal Aorta and Superior Mesenteric Artery (causing the nutcracker effect). The Vascular specialist said he couldn't treat me and said I probably developed the syndrome when my veins and arteries were forming in the womb. I'm 32 and relatively healthy minus these issues.
I can't do the hormone therapy, as my PCP says it could cause blood clots and put me at higher risk of having a stroke. (I was also diagnosed with Pelvic Congestion Syndrome and May Thurner Syndrome, all at the same time of the NCS diagnosis). I haven't heard of a "Vascular Electo-physiologist", but I will definitely check that out! I am desperate for a solution here. Any treatment recommendations are welcome and if they helped or not!