← Return to Anorexia & nausea 3 months after esophagectomy

Discussion

Anorexia & nausea 3 months after esophagectomy

Esophageal Cancer | Last Active: Aug 1, 2023 | Replies (25)

Comment receiving replies
@colleenyoung

@caregivernle, I'm sorry to hear that your friend is suffering. Being a long distance caregiver is challenging, but I'm sure he is grateful to have you researching for him.

Please note the Community Guidelines that offer 12 short rules of conduct that help keep the Mayo Clinic Connect community safe, supportive, inclusive, and respectful.

See guideline number 2.
2. Remain respectful at all times.
– Exercise tolerance and respect toward other participants whose views may differ from your own. Disagreements are fine, but mutual respect is a must.
– Personal attacks against members or health care providers are not acceptable. Such posts will be removed.

As per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) I edited your comment questioning the qualifications of another member, who also lives with esophageal cancer and has a wealth of experience to share.

Your friend sounds like he might benefit a team approach that includes physician, dietitian, speech pathologist and possibly a social worker or therapist. I'll point out that dietitians specializing in oncology do much more than suggest diets and what foods to eat. They can also provide assistance with
- managing high risk malnutrition and maintaining nutritional status during treatment
- tube feeding
- nutritional supplements
- general counseling
- providing solutions to problems, including tips for taking food when nauseated
- preventing treatment interruptions
- helping to ease side effects
- improving their overall quality of life
- advocating for the patient
- being a liaison to other team members

Do you know if your friend saw a dietitian specializing in esophageal cancer patients?

Jump to this post


Replies to "@caregivernle, I'm sorry to hear that your friend is suffering. Being a long distance caregiver is..."

Yes of course he did see a dietician specializing in oncology as part of his team at NYU. Basically all the dietician did was tell him to eat small meals, avoid eating late in the day, and avoid fatty foods. The dietician did not get involved after that and has not been proactive despite the fact that his oncologist and surgeon there know he is not eating and not hungry. He had a stay in the hospital as a result of the anorexia. The oncologist there prescribed him dronabinol which did not work for him. And yes he has a team that includes all of the people you mention, however the team is not giving him all the help he needs. Otherwise I would not be posting here for support. His hospital is NYU, one of the leading hospitals, however no one on his team is proactively reaching out to him, and because he has no energy and is losing hope, he is not in a position to reach out himself. There is no patient advocacy happening there on a proactive basis.

I am sorry you felt the need to delete my post. I did not find his comments helpful or insightful and they did not share any personal experience, and also I don't tend to find people who write things like "r u" for are you to be very educated. I am at a point of frustration and looking for actual help from people who have something actually helpful to contribute, like the other two kind folks who responded. I have to say I also found your scolding of me here not terribly helpful either, and also condescending. I don't think I'll be posting here anymore.