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Interstitial Cystitis - I would like to connect with others
Kidney & Bladder | Last Active: Jul 31 8:37am | Replies (67)Comment receiving replies
I’m technologically challenged “by choice” so I don’t know if you’ll get this. I don’t know if my email will automatically show up or not. I have had IC for about 35 yrs have had different instillations and hydrodistentions. It is hard for people to understand that you aren’t feeling well because a lot of the time we don’t look sick. As you have probably gathered I’m new at this. Please contact me
Replies to "I’m technologically challenged “by choice” so I don’t know if you’ll get this. I don’t know..."
If you could delete me from the thread. I have had resolution to my symptoms, turns out my symptoms were due to a failed bladder sling and since taking my sling out I am now symptom free. thank you
Hi @51irishlass
I have removed your personal email address from your message above. As @johnbishop mentioned, this is to protect privacy. We don't want you getting unwanted spam. By participating in this discussion you will receive an email notification each time a new message has been posted and be able to connect with others talking about interstitial cystitis.
I’m sorry you have suffered so long. I just started to develop IC around Thanksgiving and have been in extreme pain since. No flares...just constant and cannot imagine living further like this. Do you have flares? If so , how long do they last? Any suggestions for relief? I’ve been doing bladder installations with minimal relief.
Connect
Hello @51irishlass -- welcome to Connect. I'm glad you found us. Connect is a good, safe place to share your health concerns and learn what others with similar health problems are doing for treatments. I'm tagging our moderator Kanaaz @kanaazpereira to have her delete your email address to protect your privacy. The way Connect works is that you will automatically get an email notification sent to you if anyone makes a post to a discussion you have chosen to Follow. You follow a discussion by clicking on the +Follow at the top of the screen in the discussion description.
@susierq111 @tbeckys @cbs61752 @kas1792 @operationqueen @rdrdhap @suzette @barb54 @8dzaweek @lexi @jeananderson2014 @mgnunez75 @Weedy @praymond234 @mogulers @kerrilynn1 @jmgm @charlenem, have posted about interstitial cystitis (IC) in previous discussions, and I hope that they will return to share their experiences.
I’d also encourage you to read this information on interstitial cystitis from Mayo Clinic: http://mayocl.in/1v8Vak4.
@51irishlass have you altered your diet or thought about ways you could change it? Do you have any specific questions about IC, or maybe insights to share with Connect members?
John