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PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 1:21pm | Replies (445)Comment receiving replies
Kurt25, as I have read elsewhere, you are not relentlessly tapering to 0, but to the lowest dose to manage your inflammation. It appears you are not ready to taper to 10mg. Timing is as they say everything. You may need to taper slow the lower you go. For some that can be .5 mg over a 7 week taper. Slowly, slowly gets it done. Good luck. PMR comes with its own schedule.
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About tapering: I am now down to 12.5mg, having started at 20, then 30, then 25, then 20 again. When I got to 20 (weekly tapering) I began a 2.5 taper per week. Now I am at 12.5 and fingers crossed, no pain. My doctor said when I reach 10mg (next week) I will taper 1 mg per month. I was surprised she said per month. As I do the math it will take me 10 months to get off this medication if all goes well. I am reading and hearing from others that the taper when under 10 mg has to be really slow so the body can adjust. Of course the caveat is that some of our bodies “adjust” better than others. I am also prepared to take a very low maintenance dose of prednisone if that will keep the PMR pain at bay. When I get under 10mg I will let you know how things are going. Happy Fourth of July to all. Let’s try to have some fun today and put PMR in the back of our brain for a while! Liz