Like you I know, it’s good to know that others know what you’re talking about and feeling. I just wanted to clarify that I have not been diagnosed with DIME. Only DISH & osteoarthritis. I also have heart issues that may have been affected by dish but also something that I was born with. Dish is a connective tissue disorder and I have been told I have a connective tissue disorder. As to whether dish is the connective tissue disorder that caused some of my heart issues, I don’t know. I am so sorry for you that you have DIME as well and fibromyalgia. You have a lot going on.
I’m glad you are reading things but make sure that they are from reputable resources. Smaller studies are interesting but not necessarily of a lot of value. I don’t know if you’ve come across people who don’t even know about dish. I have even gone to orthopedics PA and he had no idea what I was talking about. I guess in PA/ medical school they don’t talk about it much or not at all. If they do talk about it, then they say it’s nothing. And that may be true for some people, but for those of us who suffer with it, it is something! I go to pain management, and they have given me the name of another dish patient with that person’s permission. I have not had a chance to call him yet, but I am looking forward to seeing if he can give me any other information that I don’t already have.
Good luck to you and to any of the others on this site, who are dealing with us.