← Return to NET symptoms despite follow-up lab work ok
DiscussionNET symptoms despite follow-up lab work ok
Neuroendocrine Tumors (NETs) | Last Active: Dec 21, 2023 | Replies (42)Comment receiving replies
Replies to "I agree with other comments you need to respectfully push your care team for possible treatments..."
I was interested in peoples' stories if anyone else had similar experiences in being ill, but not having any test results to substantiate their symptoms. In January, I told my oncologist that I thought it would be wise for me to pursue consults with various doctors in different fields to explore the possibility that my symptoms are related to something other than NET. So far my lab work has been fine and the feeling is that my symptoms are related to the NET. I am sorry for what you had to experience, and for years of misdiagnosis. I tell my doctors that I need to be proactive in my care, but I think I need to be less polite and more aggressive in requesting more testing. Thank you so much for sharing your story.