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@missyb57

Ive had IC for 12 years I take Elmiron 3 times a,day & it has,truly helped me with it. It is VERY expensive like about $700 a month but since it is the obly drug for IC my insurance covers it i just have my copay. I did have bladder instills for over 2 years when first diagnosed & they themselves were horrifically painful. They used a chemical called DMSO in tgrm & it was like setting my bladder on fire. What actually seemed to help were the bladder distensions when they would go in & look inside my bladder & somehow tgey blow it up or full it up to & I would actually get a couple pain free months afterwards Good luck with your pain & your treatment

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Replies to "Ive had IC for 12 years I take Elmiron 3 times a,day & it has,truly helped..."

DMSO is one type of medication. If your bladder is sensitive to that typeb of installation, they can try different variations to see what you can handle.
These days, a bladder cocktail of lidocaine, sodium bicarbonate, heparin and gentamicin are more common. Some doctors use bupivacaine, triamcinolone along with heparin and gentamicin.
Here's some good info:
https://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/diagnosis-treatment/drc-20354362

I just had a cystoscope with distention. I have had negative bladder infection results from my urologists. I changed to a urogyn and she diagnosed the problem on the first visit. I take hydroxyyzine at bedtime and AZO during flare ups. Ihave tried other meds but they are either too expensive or didn’t help

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