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Interstitial Cystitis - I would like to connect with others
Kidney & Bladder | Last Active: Oct 30, 2021 | Replies (66)Comment receiving replies
Yes, Elmiron has helped somewhat, but they raised the price to $680.00 for a months supply. Insurance will cover all but $125.00 until July 1st of this year. I've been taking Elmiron for more than 10 years, and now all of the sudden the price has went up 10 fold. I have a urologist that seems to know more than others about IC, but still there is not much support in our area (WV) for IC,
Low doses of Klonipin were also prescribed to relax the bladder, and that works too. But the problem is IC itself. Do one wrong thing (eat the wrong food, drink the wrong tea or too much exercise) and it flairs up within days.
Replies to "Yes, Elmiron has helped somewhat, but they raised the price to $680.00 for a months supply...."
Be very careful of the elmiron. Recently, they have found a link between the use of elmiron and retina damage. I have taken elmiron for 4 years, and I suffer from its side effects. I find it very difficult, if not impossible, to see in dim light. Google “elmiron lawsuits” for a lot of helpful information. Good luck!
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I have not tried the medication but I have found to much physical work does cause flares. I helped my mom rake this weekend and weed her garden and that set my IC up for a flare