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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: May 2 12:23pm | Replies (261)
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@sb4ca

Looking for others with this disorder. My neurologist has said my balance is being effected and I can second that. I'm afraid others might think I'm drunk. Just repeated testing and he said our next visit he wants to discuss IVIG which I've had before though that was for a primary immune deficiency

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Replies to "Looking for others with this disorder. My neurologist has said my balance is being effected and..."
edva1943 | @edva1943 | Jul 4, 2023

Was diagnosed with CIDPr four years ago. It was progressive (for over 30 years), and Dr. said I was likely to end up in a wheelchair, unless treatment was successful. He recommended IVIG, which has been very helpful. Has been some improvement in balance and strength. Most important, it's not getting worse.

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