Are you taking Reclast for osteoporosis?

Great video @ans. Thank you!

It really shows the blunting of the effects of anabolics by using anti-resorptives first (often required by insurance). The standard of practice dictated by insurance needs to change!

@windyshores , I’m curious why your doctor doesn’t use Prolia and why you would never use it? It’s often so overwhelming to research information about osteoporosis treatment as no treatment is without negative factors.

@ymv my doc doesn't use Prolia because of the rebound/drop off in bone density with increased rate of fractures. I also have concerns about my immune system which is already out of whack.

I highly recommend the video posted by @ans above.

@windyshores, I read the article which is from 2018 so not sure if more recent research concurs. Will discuss with my doctor. Regarding your treatment, if your doctor doesn’t prescribe Prolia post Tymlos what is being recommended in order to maintain the bone growth?

Reclast. Alendronate.

@windyshores , I finally found the video with Dr Leder and his recommendation. It was very informative. I will have to pin my doctor down regarding his recommendation. I’m not sure if the fact that I was on alendronate followed by 5 years of Reclast prevents me from transitioning to either one of them (again). At least now I have more information to facilitate discussion.

I had Reclast infusions for three years. Absolutely no side affects. My bones are still bad and I will be taking monthly injections for twelve months of Encinitas. Fingers crossed, it will prove helpful in building none. After the twelve months injections, I will start on Prolia.

@colleenyoung and others,
I am still not on anything. This is such a difficult decision. I have a new DEXA scheduled in October and appointments with the endocrinologist that I went to last year who recommended Reclast and am also trying to make an appointment with the endocrinologist I see for diabetes and hypothyroidism so I can get a second opinion. Both of them are very highly regarded. I am having so much trouble making that appointment though that I'm getting paranoid!

As it is I am exercising, doing weight-bearing exercises along with others, (balance, core, cardio), taking calcium, vitamins D and K. I am scared to death about the medications though. I have a history of having problems with medications. I had to be changed from tacrolimus, the 1st medicine of choice for liver transplant patients, to sirolimus due to problems. When I was on a BP medication a number of years ago I had problems and had to be switched, and recently I had to discontinue a cholesterol medication due to problems. You probably think that it's all in my mind, but actually I never read the side-effects! I went to my doctor for constant cough after she put me on lisinopril and she immediately knew that was the cause, and I was having terrible pains in my legs and a friend asked me if I was on a cholesterol drug, which I was! Who would think that a BP med could cause a cough and that a cholesterol med could cause muscle pains? I also have had problems with some PPIs and with a medication that I was given prior to transplant that that made me sick for two days. So, you can see my reluctance to start on a medication with such serious, well-known side-effects. I still do not know what I will do, I need to do a lot more research before I made a decision but I don't retain medical info well so I want to do it a bit closer to my appointments.

I am trying to follow these discussions to gain as much knowledge as possible to help me with this decision. Right now I am favoring Tymlos for starters.
JK

@windyshores
I appreciate your reply and information. Last night was my first dose and I experienced mild nausea and headache about an hour after administering a full dose. Am keeping my fingers crossed for ongoing treatment. After you complete your full course will you start/resume Prolia?