Hi- I was wondering if you ever went forward with IVIG? I was diagnosed with the FGFR3 antibody in late 2019/early 2020. By the time we got around to discussing treatment options, it was covid lockdown and the idea of going out for infusions or doing home infusions with a stranger sounded crazy.

But then my neurologist left and so far there hasn’t been a provider willing to implant her plan of care or who felt knowledgeable. I’m considering it again, but because the blood test isn’t fda approved and neither is IVIG for this purpose, my insurance may not cover it and it’s kind of a toss-up whether or not it would help. So I’ve just been sitting on it. I wanted to ask what your experience has been?