← Return to One-week pre Autogolous BMT: I'm afraid I'm not prepared

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@auntieoakley

Hello @jstpeachey the honest truth is we were terrified when my husband had his first at Mayo Rochester. I really did pack everything including the sink. Mayo tries to prepare you for everything but nothing really can. You are already in the process if you have rented a condo, and done your collection. Each step you go through will be new but you will be ok through it. There were some pretty hard days for my husband at about post transplant day 10, but this doesn’t last and you have all the support being treated at Mayo can give. These people are the best of the best.
My husband did this twice and collected for a third just in case he would need it. Our favorite saying is “it wasn’t always easy, but it is always worth it”.
The things that brought us the most comfort being 1300 miles from home.
Our own down comforter, britta water pitcher so the strange water didn’t taste funny, our own tea cups from home.
Comfortable loungewear, and something to keep hands and mind busy during the long days of “just being there” are important for the caregiver. Thank God for knitting. Lol
My husband gained 13 years and counting with Multiple Myeloma, he just told me he would do it all again.
Do you have specific concerns about the chemo, or the transplant?

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Replies to "Hello @jstpeachey the honest truth is we were terrified when my husband had his first at..."

So good to hear about your husband and thank God for Mayo. My main concern is how to prepare after chemo, since your not to be left alone, you can only stock up on so much. Were you able to leave him after a certain amount of time to replenish? Did you depend on delivery services?? One thing I’m embarrassed to ask but really need to know, did he need adult diapers?? I have to go to Mayo daily after the transplant, I’m so afraid of accidents. Another is pre cleaning, how extensive did you have to get? Any suggestions will be helpful