← Return to One-week pre Autogolous BMT: I'm afraid I'm not prepared

Discussion
Comment receiving replies
@loribmt

Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name and tell you that this will all be Just Peachy”! You’ve come to the right place because there are a number of us who have been through the BMT process and are more than willing to help out where we can.

How long do you need to stay near the clinic? My husband and I relocated to Rochester for 4 months during my allo transplant. So needless to say I packed everything but the kitchen sink. 😅. Not really and I was surprisingly organized! (That’s not my strong suit!). We stayed in a 2 bedroom, 2 bath hotel suite so we were limited in space. With a condo, that will feel more like home. Here is a link to a reply I previously posted on what to pack for transplant:
https://connect.mayoclinic.org/comment/703859/
And another discussion for patients with solid organ. But no matter, the needs are the same when we live away from home:
~Packing question: What did you have ready for "the call"?
https://connect.mayoclinic.org/discussion/packing-question/
We have a number of members in the forum who have had Auto transplants who have shared their stories and experiences to help others along the same journey. I’d like you to meet @auntieoakley. @ckeys @callie28 @countrygirlusa @capthondo and others who have gone through this journey or are caregivers. Their experiences are posted below in the links provide.

This reply is from 30+ days after @capthondo had his transplant! It remains such an encouraging, positive comment!
https://connect.mayoclinic.org/comment/746563/
@capthondo shares his auto transplant story here:
https://connect.mayoclinic.org/comment/747475/
It’s from this discussion group for Multiple Myeloma:
https://connect.mayoclinic.org/comment/716285/
@countrygirlusa had an auto transplant for AL Amyloidosis which is a ‘cousin’ of multiple myeloma.
https://connect.mayoclinic.org/comment/716285/
The full discussion link is here:
~My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
A big suggestion is to avoid the negative comments. We all go through this journey on our own terms and we’re all different. It isn’t an easy journey but I also think you’ve gone through a lot already to get to this point! Right? So this is nothing more except a new step into unknown territory. But it is a means to a healthier life ahead. May I ask what bought you to needing a transplant?

Jump to this post


Replies to "Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name..."

Did you find a need for a shower stool?? I know everyone is different but, this condo has a pretty big walk-in shower, I’ve ordered suction type handles because there wasn’t any (odd) just wasn’t sure about the stool