Hi, bettyg81pain (@bettyg81pain)

I've often wondered where that shyness comes from, that reluctance to talk about medical matters, not that we'd want dinnertime talk to be about nothing but everyone's aches and itches, but a quiet indication that a member of the family was at least willing to discuss a health issue that could be of critical importance to other members of the family. My family's reluctance to talk about such things, now that they're all gone, has left me with nothing but anecdotal information.

Ray (@ray666)

My initial diagnosis 7 or so years ago was fibromyalgia, which I reluctantly accepted. I knew my symptoms didn’t match that diagnosis. I actually have SFN. Your sister may have had neuropathy as well but never went further than accepting the fibromyalgia diagnosis. I had some interesting talks with my 91 year old Dad recently, who has been in pain as long as I can remember, but has never had it assessed or treated. He just bears it, and is very active. His Dad was a farmer, and was also affected by some disabilities with his “nerves”. My Dad was truly surprised at my assessment of possible family traits. My sister has similar pain to me, although not as disabling.