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DiscussionIf you are looking to go south for a month or two in the winter?
MAC & Bronchiectasis | Last Active: Jul 5, 2023 | Replies (13)Comment receiving replies
Replies to "Sue, I value your outlook, experience and wisdom regarding living with our condition. I have seen..."
Quoting @msk "When i was njh in march of this year i asked my doctor there if the ocean was bad for mac. She said mac is everywhere and no one place is worst than others. We should be able to enjoy our lives. We just need to be careful. " This is exactly what I have been told by my primary, my pulmonologist, my infectious disease doc and my counselor.
As to your other question, if I had the opportunity, I would go to Hawaii.
We are going to fly next week to visit some family members - masked, both for our protection and the people we will visit. The only two things we are reluctant to do are a cruise and a days-long group bus tour. Both have resulted in multiple friends and relatives on those trips ending up with Covid or another lung infection.
This is how we, with lung conditions and other ailments, live our life carefully. But we are belt-or-suspenders people, and unlikely to change at this stage of life. If you are a belt-and-suspenders person, tend to be very anxious, or have a very fragile immune system, your decision may be different.was told on the very first day of my Bronchiectasis diagnosis, even before MAC and Pseudomonas were confirmed, by an old time pulmo "Bronchiectasis is a disease you live with, not die from. You will have to make some changes in what you do, but just keep on going." Even so, when I read on Connect and elsewhere, I was originally scared, really scared. Then my sister reminded me that our Mom lived with bronchiectasis, and possibly MAC, for 20 years, and died at 84 of unrelated, inherited heart issues.
This is how my partner and I, with lung conditions and other ailments, live our life carefully. But we are belt-or-suspenders people, and unlikely to change at this stage of life. If you are a belt-and-suspenders person, tend to be very anxious, or have a very fragile immune system, your decision may be different.
I hope you can work out what your comfort level is and go forward,
Sue
PS Last year, within a single week, I met 2 other Winter Texans, from Wisconsin and Colorado, who live with MAC & Bronchiectasis. Bothe are in their 80's, and spend every winter near me.