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@pj03

Thank you Gary! We are just in the beginning of the journey. I’m not quite sure from the endoscopy on April 14 until now it’s definitely been a fast ride. I got him into appointments quickly by the grace of God making sure I called for every cancellation of appointment so that I could get in quicker. Six weeks of radiation and chemo are done, but it wasn’t until the last couple weeks that I see my husband deteriorate. Now we are in that six weeks of recovery, but it sure is difficult. The nausea and vomiting are real. He does not do well with that. Surgery will be in six weeks. Did you ever regain your immune system and your strength for such an extensive surgery? I’ve been a postsurgical nurse for majority of my career, and it’s very difficult to recover from such an extensive surgery if you’re going in very weak and somewhat immunocompromised.
I want to take the entire month off after his surgery to assist him. But he thinks the whole we need a week off and then back to work. How long did it take before you became more independent after your surgery? To drive to doctor appointments, to be able to manage your activities of daily living, including tube, feedings by yourself etc .
Just some questions I have. Thank you.

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Replies to "Thank you Gary! We are just in the beginning of the journey. I’m not quite sure..."

You call... we'll chat... anything and everything.

Gary,

Things still to discuss... to bring to your attention... even as you are awaiting his surgery date.

When I say call me... I mean it... I will discuss things with you, and you get to ask ANYTHING! The journey is long, and there are distinct differences in how we suffer... both physically and mentally, at the various stages of the EC journey.

I'm free... even though it's the 4th of July... so you two call if you have the time. I've done this with hundreds now (no exaggeration). Without exception, they all find these conversations beneficial. Maybe I'm selfish... I do this because it makes me feel better. Be well...