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Autoimmune Diseases | Last Active: Nov 27, 2023 | Replies (31)
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Hello @goldacharna, I would like to add my welcome to Connect along with @dwyermw and others. Hoping your upcoming treatments will provide some relief for your CIDP symptoms.
You might find the following related discussions helpful.
— Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions:
https://connect.mayoclinic.org/discussion/cidp-having-ivig-reactions/
— CIDP and concerns about treatment risk factors:
https://connect.mayoclinic.org/discussion/cidp/.
Can you let us know how your treatment goes next week?
Replies to "Hello @goldacharna, I would like to add my welcome to Connect along with @dwyermw and others...."
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Well, finished my initial 4 days IGIV treatment yesterday, felt some tiny improvement after day 3, but yesterday after infusion and all day today it’s much worse, actually my symptoms are worse I’ve had it since the problem started. So upsetting. Has anybody had anything like I’m describing? Thank you in advance for your feed back.