Hello @scolio
Yes to your RLS question- I have had it since childhood ( so I am going to assume genetics are to blame) . I was on pramipexole for almost 3 years, but it wasn’t working so well anymore and some of my behaviors finally made me do a deep dive into the med. I just stopped it cold turkey 3 days ago. I wish I had found this site sooner, I never would have taken it at all.
As far as the constipation goes, I tried all the usual things doctors suggest, I was even a participant in one of the drug trials for a very popular drug often recommended. First of all, let me state that a high fiber diet is one of the worst things for me, it binds me up terribly. I have relied on certain foods that seem to help my system- Australian black licorice-, & low fat ice cream with fake sugar. I used to wait up to 2 weeks of constipation before I would resort to these, but now I don’t wait any longer than 5 days. I started eating 1 cup of a cold oats (Brekki) every night, so far my body has been responding well. Last week I added a probiotic capsule with 60 billion CFU.
I am scheduled for a colonoscopy in a few weeks, but they are making me start the protocol a week before- no vegetables, fruit, nuts, seeds, plus miralax every day, then the usual pre day prep.